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Voice For Joanie

April 22, 2016

Remembering our Founder and Divine Counselor, Shirley A. Fredlund


Dear Voice for Joanie Supporter,

As part of our on-going effort to provide adaptive communication equipment – at no charge – to victims of ALS/Amyotrophic Lateral Sclerosis (also known as Lou Gehrig’s Disease), Voice for Joanie, Inc., will participate for the first time in this year’s Give Local program. This annual online community giving challenge, Give Local Greater Waterbury & Litchfield Hills, is run locally by the Connecticut Community Foundation.

WHAT CAN YOU DO?

Mark your calendar for May 3 and 4. This is strictly an ONLINE event. Please make an online credit card contribution to VFJ . This 36-hour fundraising challenge begins at 7:00AM on May 3, 2016 and ends at 7:00PM on May 4, 2016. Also, please ask your friends to make a contribution to VFJ through the Give Local site during those 36 hours

HOW IS VFJ HELPED?

By taking part in this event, donors can view profiles of many local charities – all have been certified by Give Local as legal non-profits. Through GiveLocalCCF.org our VFJ profile can be viewed by a wider audience than we have been able to reach to date. The more individuals who know about our life-changing efforts, the more funds we hope to raise to help the individuals suffering with ALS. Some donors give non-specific donations to Give Local. Those donations are split among the participating non-profits in the same percentage as direct contributions received by each non-profit during the 36-hour event. (In the past, this amount has been 11% - 15%.)

Thank you in advance for your contribution and for helping us to raise funds through Give Local.



"Bringing a Voice to the Voiceless"

Imagine being unable to speak. Now imagine being both unable to speak and completely paralyzed.This is the agony of a victim of ALS (Amyotrophic Lateral Sclerosis or Lou Gehrig’s disease). You have thoughts but no way to express them. You are cold, hungry, in pain, or want to say "thank you" or "I love you" but you can longer speak. That’s when the work of Voice For Joanie, Inc., (VFJ) is priceless.

As VFJ enters its 28th year, the silent sufferers of ALS continue to need assistance to express their needs, feelings, and thoughts. ALS is a progressive, fatal, devastating disease that causes degeneration of motor neurons that control all voluntary muscle movement. It does not discriminate, affecting men and women from all ethnic backgrounds and all walks of life. Sufferers of ALS become completely paralyzed – unable to move any muscle — and are robbed of the ability to communicate.

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A New Milford woman dedicates her life to helping those who cannot communicate due to ALS, or Lou Gehrig's disease. By supplying computers and software, she has single-handedly helped hundreds of people to regain their voices, and maintain their independence.

Shirley Fredlund: I would talk with her on the phone and notice the slurring in her words. I would go to visit her and notice she was having more difficulty; this continued to a point where she was unable to talk and move. The only thing she was able to do was blink. We used to talk to each other with a letter board. I would point to the letter and she would indicate by blinking which letter she wished to use and we would spell out words. And I thought, there has to be a better way

LettersTom's ArtMyra Kraft Award



People with ALS

Joanie

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Catfish Hunter

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Machael Zaslow

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Stephen Hawking

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